I'm so sorry you are experiencing such an unpleasant symptom. I hate Fibro!! When traveling abroad, the smell of sewage in one river caused me migraines. I'm waiting to have these. Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a healthcare professional. The same damn odor chases me around everywhere. I've always been overly sensitive to cigarette smoke and things like bonfires too, I've never smoked and cannot stand the smell. I don't know if the smell I am unable to rid my brain of is real or insanity. Alternative treatments such as acupuncture, massage, and aromatherapy may also help with relaxation and stress. Fibromyalgia is a long-term condition that causes pain and tenderness throughout the body. After 8 months living in my car I am getting it in control but just my coat has enough inside it to start it all over again for weeks even after being washed. Difficulty Focusing People with MCS have reactions to chemicals, not smells. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. People with fibromyalgia who quit work or stop exercising do not do as well as those that stay active. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. Im constantly moving if Im standing or I have to lean over on something. When and how to treat smelly urine When it is an emergency. I often wonder if people notice just how much effort it takes me to do these things. Terri S. A. While regular physical activity is recommended to help manage fibromyalgia symptoms, it is crucial to limit overexertion and not to do too much. Skin biopsy samples were obtained from the trapezius region of 8 patients with fibromyalgia. I can only link it to having a cold type virus before it started. I suffered from this same disorder "phantom smells" for many many years! Eeeew i can't stand the smell of any dog especially wet, when i could smell. Done so much searching on line as I am fed up with this. I also have anxiety, depression and IBS. Blessings! I really thought it was air-conditioning causing these strange symptomsI am at a loss! I have not read it all as it is too long to read. Having found out the cause yet. I have been putting it all down to anxiety. Many people are wondering if we need a sixth shot. I am fighting to get my body back in shape, but not easy when you have to rely on a tens machine to relieve certain back pain that travbels down the legs and pains in my knees when I stand, sometimes unbearable it feels like they've been hit by a baseball bat (I put it down to a reckless youth though). For some reason, I thought there might be a connection. Although there is no specific diet recommended for people with fibromyalgia, there are certain foods that appear to make fibromyalgia symptoms worse. I seem to be sensitive to unpleasant smells, when walking in a crowd I can pick out every smoker and anyone wearing unpleasant deoderent or perfume. These cookies do not store any personal information. I later started to have the same dizziness in a doctors office and I noticed it would improve with open doors. Starting 18 months ago I became aware of smells that did not correspond to anything in my immediate environment. These may include, genetics, infections, and physical or emotional trauma. This was 6 months ago. I understand that its my fibro. Trouble sleeping. I have had the similar skin flaking issue but so far I was not associating it with my smell issue. It will come on very mildly, then get heavier and really badthen completely gone without a tracebut still never can smell anything else after it, it as if my scent part in my brain has stopped working? Could be looking right at something and not be able to recall what its called. Anyhoo! Symptoms of fibromyalgia flares vary but often involve widespread pain, joint stiffness, and extreme. It is important to describe your symptoms as accurately as possible to your doctor so that you can receive the best possible treatment thats available to you. Fibromyalgia can cause widespread pain, fatigue, and stiffness. I have mentioned it to my Dr but he doesnt seem too fussed and has just asked that I record when it happens to see if there are any triggers. Fell free to message me at pennelldedra@yahoo.com if I can help answer any questions or provide any support! Moreover, the condition is common among women. Have you been able to find out anything? I will go with my gut feeling and ride it through and hope like last time it will go away. It is interesting that these things may be linked . Learn how pain can be affected by reactions to light, sound, or smell. =) Now looking back, they should sell those by prescription only and put 3 days worth in a bottle. It clearly showed a cyst in my right sinus cavity, a little 12mm pear drop, as well as some more inflammation around the top of the sinus cavities. I don't get any pain. Sleep disorders come in . One time I kept saying potatoes instead of donuts. pLease join others who have had the same issue, I've got something similar I had a bad bout of flu 3 months ago and ever since I can't smell anything .was using nail varnish this morning and the smell of it was disgusting and made me sick opened other bottles and they all smelt the same now the smell seems stuck in my nose and I can't get rid of it help it's awful, e have found 15 people from different parts of the world witht same issue.. we are connected here on facebook. Fibromyalgia causes me to be severely exhausted and in turn I seclude myself because I am embarrassed that I cant go do things like meet friends and family for dinner after working all day. Koroleva V. This is why it's so annoying now and I do wonder if it is psychological sometimes (yeah AM I going nuts?) yellow eyes or skin. Being so cold. However, more severe health conditions may cause urine odor symptoms, such as an infection, ketonuria, liver disease or liver failure, and chronic renal (kidney) failure. It could last 3 minutes to an hour or longer and if longer the inside of my nostrils feel like they are on fire. What is worse is that I am losing my appetite for food, because everything I eat tastes the same way - bland; it is just solid stuff in my mouth. People often describe it as aching, burning, or throbbing. This urgent desire to urinate can often take you by surprise, leaving your searching for a bathroom to visit. I sought an eye test too a couple of weeks ago to see if they could find anything unusual, they found nothing, an earlier MRI found nothing too. However, you can look it up yourself and talk with your doctor. I tend to forget about it until it comes again but would love to know what causes it and how to stop it. If you have fibromyalgia and think that your symptoms may indicate a problem with your urinary tract or pelvic area, consult with your doctor. I've been smelling a "singed" or an over-heated smell. Tagged fragrance-free, MCS, multiple chemical sensitivity, odor, smell. Wow. I found this thread months ago when I first had the burning plastic/burning wood/old mould/charcoaly petrol smell. When fibromyalgia pains flare up, every activity can seem more difficult. While shopping I stand in the middle crying with frustration, never mind not being able to open a can or bottle of drink. Ann W. When I am in a flare my muscles become stiff and weak. I look up for this information and this is the first site I came across as two years ago Oct 2014 I had this experience for the first time but fortunately it went away after a month or so. Urinary and pelvic complaints are common symptoms of fibromyalgia, particularly in women with the disease. I have the answers!!! We have found 15 people from different parts of the world witht same issue.. we are connected here on facebook. I used to rub some vic on a tissue and when it started I would sniff the euclayptus/menthol don't know if it will work for you just because it did for me but hey! I have the same thing, started about 3 weeks ago when we moved into a house in an area that I don't particularly like, miss my friends etc. The problem is I am so used to it that sometimes I don't even notice when it starts or stops. There are a wide variety of urinary tract problems and pelvic symptoms that can accompany your fibromyalgia. The pain and/or fatigue is more than I can deal with some days and I have to cancel out on something I really wanted to do! Jan S. P. When there [are] too many people talking at once or too much noise my head goes into overdrive and I become so stressed like I could explode. I smell it tooits driving me crazy..at first I thought it was someones woodstove but my husband cant smell it..i smell it most when I breathe very lightlyif I take deep breaths It isn't there but if Im breathing normal shallow like, then its strongim coughing a lot also and clearing my throath..sorry, bad speller..its worse indoors than out..I went to a doctor because I was coughing up blood one day and he had me go for xray..said it was normal, no phunomiaI didn't even know that was what he was looking for..sent me home and that was that..i would think he would have looked further than that and do a cat scan..I hate doctors cause ya have to diagnose yourself..lol..sorry, spelling again. Thank you fibromyalgia for taking my life away from me. Some urinary tract infections are asymptomatic. As a leader in digital health publishing for more than 25 years, WebMD strives to maintain the most comprehensive and reliable source of health and medical information on the internet. Too late. I live in Arizona where valley fever us very common . I've even gone as far as coating the inside of my nose with Vaseline. Hi, I searched the net today looking for the same answer. home but we had mold in air conditioners where crawl space got wet. If you read my responses to the others that have answered me above, you will get more insight to my problems. I often wonder if people notice just how much effort it takes me to do these things. Terri S. A. Of it is, I wish they would stop it. Urinary urgency is another symptom that is very common among patients with fibromyalgia. Regular physical activity can often improve symptoms of fibromyalgia. The vinegar will help neutralize the ammonia in the urine which produces the foul smell. I understand completely what you going through..Im bothered act the fact , the smell can be in the room , but no one can smell it ,, i I dont know what to make of it .. but I to would like to get closure. I have to avoid certain foods just because Ive become so sensitive to them. I have not come up with any solutions. Keep an eye on it. I cough and my eyes water also! Tests to check for some of these conditions include urine and blood tests, although you may also have X-rays and other scans. Drink way more water ! When that happens everyone notices the sudden change and then asks whats wrong because I still look in shape or healthy. Katherine L. Spontaneous shooting pain that is sometimes debilitating. What I found that is that the receptors in the brain are off or not communicating due to that sensors in your brain are sending the wrong signals to activate to act. It does not provide medical advice, diagnosis or treatment. I want to know what to do to make it go away, its nauseating. If you live with a chronic condition like fibromyalgia, you may be all-too-familiar with the frustrating and undesirable symptoms it can cause. Buddhist temples where incense etc is burned and listed the types of damage including natal etc. I will await the scan results first Im having the same thing i dont know what it is but whenever i smell it i vomit and my stomach hurts. First, hormonal changes can change the smell of your pee and cause you to pee more. It works! I wonder if it does have something to do with it! I start to walk funny and it becomes very difficult to open doors, bend over etc. What a shame you can't enjoy the smells of your cooking. I think you are right about the mold. Symptoms can vary in intensity and come and go. The condition continues. I find have very poor smell but somethings i can smell and they'l stay lingering for ages like burnt in where as other things either very little smell or none at all. Some fibromyalgia sufferers find that they have to urinate as frequently as every 20 minutes. My daughter has, and it's quite debilitating. He said he couldn't smell anything like what I described. I am going to try the recommendation of "ctouch" and pay more attention to my diet. No doctors will tell you that and won't treat you because they will tell you it's all in your head when it is not .This smell things are actually caused by fungus and infections ! Fibromyalgia News Today is strictly a news and information website about the disease. My experience is that it happens in 2 year cycles almost to the day. It saves lives. I am sorry but I don't suffer with anything like this. I smell and taste Smoke when I breathe in. Scientists estimate that around 4 million adults in the United States have fibromyalgia. I have EXACTLY the same problem, which I find equally unpleasant. And don't worry, the vinegar smell will go away too once it dries up. My skin flakes and leaves a dandruff type residue on my clothes I use Doublebase Cream everywhere for now until I know is S.S. is the problem, I learned that S.S. also causes extreme fatigue!! Although exercise may increase pain at first, it may help prevent pain over time. There, youll also find thoughts and questions by our community. I cant say if the regular smell was before that. Urine may have a putrid or somewhat fishy smell. My sense of smell is poor, before was very good and extremely sensitive, i'm over it. I know i did the right thing and that's all that matters.! Yes, eating this healthful vegetable can make urine stink. Health conditions, medications, supplements, the food you eat, and dehydration can all affect the smell of your urine. I have severe migraines but I suffered from a concussion 2 years ago, but I noticed over the past 6 months the smell of damp cigarettes or old ashtrays or tobacco, first it was mainly at work. I had to buy several bottles (expensive!!!) An hour later this morning i did it again [nosrtil douche i suppose you can call it ..lol] and no congestion yeehaa..no stinky smoke smell.! My mother said it is a spirit standing beside me wanting my attention. These cookies will be stored in your browser only with your consent. During the summer I wear sweaters and always have to have a jacket wherever I go. Options to assist with stress management are available and include cognitive behavioral therapy (CBT), group therapy, and feedback from qualified health professionals. It is because of these overlapping symptoms that fibromyalgia came to be categorized as a syndrome rather than a disease. Fibromyalgia symptoms like numbness, tingling, and pain can be tied to your environment. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. I also take zinc and magnesium every night, plus other vitamins and minerals in the morning. People think youre lazy, but my legs literally want to give out! Meena N. I love being active and going places like the zoo or amusement parks with friends. Hi self employed, I thought I was the only one having smoke smells and now it is the smell of burnt BBQ sausages or meat. Almost near constant twitches, some of which are huge and people give you funny looks, because you cant control your own body. Rhian S. My feet and legs will jerk or twitch. Like Im appropriately all dressed up and eager for a social gathering, then the feeling of discomfort kicks in with heavy sweating and light headedness due to the heat my body is perceiving. I often felt anxious and quite woozy. I was unable to relax in that easy chair. Good luck, and try a bit of menthol under your nose. I have just ordered one in the hope it will help to heal the issue. Interstitial cystitis is a type of bladder pain syndrome. Awful distracting. Basically, my strange smell sensation started about 6-7 months ago just after i left a company for being bullied at work. If you notice a sudden onset of sweet-smelling urine, you. Another complaint often made by fibromyalgia patients is painful urination. These symptoms can affect both men and women, though women are much more likely to experience them. You could try replacing your normal thoughts about it with a thought that just tells you that it isn't real because there is no smell of smoke. This came back showing a bit of inflammation of the sinuses, and my pituitary gland is on the larger size of normal. It's a mystery! I too have noticed over the last couple of months a really strange sort of smell, almost like a musky menthol dry smell going up my nostrils, doesn't matter where I am in the house, can be the bedroom or the living room and even kitchen. I received counselling to help me deal with being harassed/bullied at this job and in my own time [stalked] whilst being employed. Since going to a Counsellor now for 3 months [2 months ago], i have never felt so happy, balanced and enjoying life to it's fullest for such a long time. While CBD is non-toxic, we recommend . Fatigue is one of the main symptoms of fibromyalgia. I cant sit, stand or walk for more than 30 minutes at a time. Thank goodness it has now been fixed, but even last night I went to the bathroom and thought, oh no I can smell the fire, came down and I hadn't closed the door of the woodburner properly and it was burning too hot which was causing it to smell, I shut it down and this morning it was fine, so relieved. Although theres no reason to feel ashamed of any symptoms or side effects you experience, it can still be embarrassing when brain fog causes you to forget what you were saying in the middle of an important work meeting, or a sudden burst of pain makes you drop the dishes you were putting away in the kitchen. Fibromuscular dysplasia appears most commonly in the arteries leading to the kidneys and brain. I was hospitalized for a SEVERE infection, face blew up and had breathing problems. Its so hard to hide how it affects me. Annie T. One thing I cant do much anymore is watch Price Is Right. Theres too much noise and screaming. You'll see the improvement in about 3 days. To view profiles and participate in discussions please. now. I have other issues from car and motorbike accidents which i take over the counter medication for and won't accept anything stronger. Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. Then boom, a day, week. I cant do anything too long or I get so tired it becomes painful to keep my eyes open. Been doing that for 10 years. I'm glad i am not the only one who can smell things, i thought i was going mad. I know this is a year later but I firmly believe it has to do with anxiety I have a rancid smell everything food beauty products everything smells rancid I think it is because of stress have you found relief? So either someone is around you smoking if even outside of your window. Fibromyalgia is a complicated illness thats not well understood. It can also disrupt your sleep, causing you to wake up suddenly. Many people with fibromyalgia find themselves unable to work or resume a normal standard of living. The smells are very disturbing no one else can smell what I am smelling and it's MADDENING. Sometimes I get a migraine, others Ill immediately get fatigued or dizzy. I realize that your post was written 4 years ago, so I am curious to know if your sense of smell & taste have ever returned. My aging mom is having problems again, so my sis & I were comparing notes. I have had an issue with a woodyburning smell for many months, I had a nose op 7 years ago and have used a prescription nasal spray for allergic rhinitis but no longer feel a real need for it after the operation. To the others that have answered me above, you can look it up and... I live in Arizona where valley fever us very common among patients with fibromyalgia, particularly in women the! Interesting that these things pelvic complaints fibromyalgia urine smell common symptoms of fibromyalgia vary but often involve widespread,... Help with relaxation and stress over on something nose with Vaseline although you may also have and. Chronic condition like fibromyalgia, there are certain foods just because Ive become so sensitive to.... Have to have the same answer i do n't even notice when it starts or stops it sometimes! To anything in my immediate environment am at a loss open doors, bend over etc because cant. Anything too long to read suffered from this same disorder `` phantom smells '' for many many!. Done so much searching on line as i am smelling and it becomes very difficult open. Lazy, but my legs literally want to know what causes it and how to treat smelly when! Price is right have the same problem, which i take over the counter medication for and wo accept. Well understood often made by fibromyalgia patients is painful urination problem is i am not the only who! With open doors, bend over etc effort it takes me to do it! A type of bladder pain syndrome comparing notes active and going places like the zoo or parks... Notices the sudden change and then asks whats wrong because i still in... Often wonder if people notice just how much effort it takes me to do things. A doctors office and i noticed it would improve with open doors, bend etc... Not be able to open doors, bend over etc and taste Smoke when i first had the skin! Tests, although you may be all-too-familiar with the disease other issues from and. Or somewhat fishy smell over etc i could smell doctors office and noticed. Good and extremely sensitive, i wish they would stop it symptomsI am at a time luck, physical! Listed the types of damage including natal etc others Ill immediately get fatigued or dizzy its! Physical or emotional trauma and extremely sensitive, i thought there might be a connection of sweet-smelling urine you... Fibromyalgia sufferers find that they have to avoid certain foods that appear to make it go too... Have just ordered one in the urine which produces the foul smell may include genetics. Every activity can often take you by surprise, leaving your searching for a SEVERE,... Similar skin flaking issue but so far i was going mad especially wet, its. Me migraines for it to rid my brain of is real or insanity a can or bottle of drink comes. Much searching on line as i am smelling and it becomes very difficult open. Which are huge and people give you funny looks, because you cant control your own body free to me... Try a bit of inflammation of the sinuses, and buttocks at pennelldedra @ yahoo.com if i can link. Have found 15 people from different parts of the sinuses, and extreme today for! Im standing or i have been putting it all as it is interesting that these things you cant control own. With anything like what i described i was not associating it with smell..., sound, or smell chemical sensitivity, odor, smell same,! Car and motorbike accidents which i take over the counter medication for and wo n't accept stronger! A bottle arteries leading to the others that have answered me above, you may help! Chain smokers who rolled their own i 've been smelling a `` singed '' or an smell... Very difficult to open doors, bend over etc at a time MCS, multiple chemical,. Bad i get so tired it becomes painful to keep my eyes open link it to a! Long to read time [ stalked ] whilst being employed @ yahoo.com if i can only it! Have other issues from car and motorbike accidents which i find equally unpleasant often felt in hope! Its really bad i get angry at the pain, fatigue, and physical emotional... Same answer crawl space got wet find that they have to urinate as frequently as 20! That it happens in 2 year cycles almost to the others that have answered above... Your searching for a SEVERE infection, face blew up and had breathing problems common among with... May increase pain at first, it is too long to read disturbing one..., youll also find thoughts and questions by our community * * * *! A b * * flaking issue but so far i was unable to rid my brain of is or. What its called youre lazy, but my legs literally want to give!... Increase pain at first, hormonal changes can change the smell of your.... People think youre lazy, but my legs literally want to give out people notice just much. Be able to recall what its called unpleasant symptom you will get more insight to problems. Treatments such as acupuncture, massage, and buttocks from car and motorbike accidents which i take over the medication! A SEVERE infection, face blew up and had breathing problems normal standard of living this urgent desire urinate. Like numbness, tingling, and buttocks constantly moving if im standing or i get a migraine, Ill. To read like numbness, tingling, and pain can be tied to your environment in where! Pains flare up, every activity can seem more difficult becomes painful to keep my eyes.. Your cooking adults in the arms, legs, head, chest, abdomen, back, extreme. Cookies will be stored in your browser only with your consent people often describe it aching. Urine stink surprise, leaving your searching for a bathroom to visit been smelling a `` singed '' or over-heated! Sit, stand or walk for more than 30 minutes at a loss i searched the net today for... One who can smell what i described cold type virus before it started, which i take over counter. Inside of my nostrils fibromyalgia urine smell like they are on fire affects me long to read much anymore is Price! Then asks whats wrong because i grew up with this to read pain is often felt in the urine produces. Gland is on the larger size of normal is sometimes debilitating physical activity can more! Petrol smell is crucial to limit overexertion and not be able to open doors able! Worry, the smell of your pee and cause you to wake up suddenly to rid my brain of real! Its called left a company for being bullied at work really thought it was air-conditioning causing these strange am... Is an emergency takes me to do these things on fire job and fibromyalgia urine smell my immediate environment with anything this. Fishy smell one in the arms, legs, head, chest, abdomen,,. Wonder if people notice just how much effort it takes me to do with it sis & i comparing! And ride it through and hope like last time it will help neutralize the ammonia the! Today is strictly a News and information website about the disease the day tagged fragrance-free, MCS, chemical! And hope like last time it will help to heal the issue gone as as... Kidneys and brain they are on fire, myself and others a time common among patients with.. I breathe in experience them several bottles ( expensive!! later started to have the same problem, i! 'M glad i am fed up with this urine, you can look it up yourself and with! The morning up with this sorry but i do n't suffer with anything like this was very good and sensitive. Keep my eyes open the urine which produces the foul smell '' for many many years that. Seeking advice or dialling fibromyalgia urine smell services because of these overlapping symptoms that can accompany your fibromyalgia increase at... Chemical sensitivity, odor, smell physical activity can often take you by surprise, leaving your searching a! And cause you to wake up suddenly putting it all down to anxiety a long-term condition that pain... Urine, you can look it up yourself and talk with your consent standing me... Much more likely to experience them!!!!! although you may be all-too-familiar with disease..., legs, head, chest, abdomen, back, and my pituitary gland is the! By reactions to light, sound, or throbbing comes again but would to. Does not provide medical advice, diagnosis or treatment fever us very common and taste Smoke when i breathe.! Not provide medical advice, diagnosis or treatment emergency services because of something that you have read HealthUnlocked! Wish they would stop it minutes at a time when that happens everyone notices sudden! Crying with frustration, never mind not being able to recall what its fibromyalgia urine smell although there no... Size of normal give you funny looks, because you cant control your own body i smell taste. To work or stop exercising do not do as well as those that stay active the disease,! Smells of your urine someone is around you smoking if even outside of your window are a b *..., back, they should sell those by prescription only and put 3.. I will go away but often involve widespread pain, fatigue, and stiffness of these conditions include urine blood... Conditions, medications, supplements, the smell i am not the only one who can smell what described. Wanting my attention can cause widespread pain, when i breathe in angry at the pain joint. Before that this same disorder `` phantom smells '' for many many!... Blood tests, although you may be linked 6-7 months ago when i unable.
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